Linking cohorts, understanding biology, improving health

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International HundredK+ Cohorts Consortium (IHCC)

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Four main aims: 1. to create an ethical and transparent programme based on consent 2. to bring benefit to NHS patients and set up a genomic medicine service for the NHS; 3. to enable new scientific discovery and medical insights; 4. to kick start the development of a UK genomics industry.

PI(s) / Lead(s) :  Mark Caulfield

Regions :  England

Member Cohorts List
Features
Genomic Data
Yes
Environmental Data
No
Biospecimens
Yes
Phenotypic-Clinical Data
Yes
Data Sharing Potential
Yes
Enrollment
Current/Target
100,000.00
500,000.00
Start /End
2013
2018

Core COVID-19 Self-Report Downloads​

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Core COVID-19 Phone Survey Downloads​​

The PDF and Rich Text (Word doc compatible) documents, include the core survey questions, which should be customized for local administration.

The CSV file contains the REDCap data dictionary, containing all core questions and skip logic. It should also be customized for local administration.

Ancillary questions are not part of the core questionnaire, but can be used for additional data capture.

If using the questionnaire, please include the citation on the previous page. If you have any questions about the survey, please contact John Connolly.

Phone Core Survey
Phone Ancillary Survey