Linking cohorts, understanding biology, improving health

International HundredK+ Cohorts Consortium (IHCC)

Member Cohorts

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Cohort NamePI/LeadRegionsEnroll StartEnroll EndEnrolledTarget EnrollmentGenomic DataEnv. DataBio specimensPhenotypic DataData SharingDate Verified
23andMeJoyce TungUSA2007Ongoing6800000YesYesYesYesYesOct 2019
45 and Up StudyMartin McNamaraAustralia20062009267153YesYesYesYesYesOct 2019
Africa Health Research Institute (AHRI) Population CohortWillem HankomSouth Africa2000Ongoing130000130000YesYesYesYesOct 2019
Apolipoprotein MORtality RISk study (AMORIS)Goran WalldiusSweden19851996812073YesYesYesYesYesOct 2019
Biobank JapanYoshinori MurakamiJapan20032018270000270000YesYesYesYesOct 2019
BioVU VanderbiltDan RodenUSA2007Ongoing244000YesNoYesYesYesOct 2019
California Teachers Study (CTS)Jim Lacey, Elena MartinezUSA19951996133477YesYesYesYesYes
Canadian Partnership for Tomorrow’s Health (CanPath)Philip AwadallaCanada2008ongoing330000YesYesYesYesYesOct 2019
Cancer Prevention Study II (CPS-II)Eric JacobsUSA198219831185106YesYesYesYesOct 2019
Cancer Prevention Study II Nutrition CohortAlpa PatelUSA19921993184194YesYesYesYesOct 2019
Children’s Hospital of Philadelphia (CHOP) BiorepositoryHakon HakonarsonUSA, Europe, South America, Canada, Saudi Arabia, Australia2006ongoing5000001000000YesYesYesYesYesOct 2019
China Kadoorie BiobankZhengming Chen,Liming LiChina20042008512891YesYesYesYesYesOct 2019
China PEACE (Patient-centered Evaluative Assessment of Cardiac Events) Million Persons ProjectLinxin JiangChina2014ongoing20000004000000NoYesYesYesYesOct 2019
Constances ProjectMarie ZinsFrance20122019210000YesYesYesYesYesOct 2019
Danish National Birth CohortMads MelbyeDenmark19982002198028YesYesYesYesOct 2019
East London Genes and HealthDavid van HeelUK2015ongoing41500100000YesYesYesYesYesOct 2019
ELSA-BrasilPaulo A. LotufoBrazil2008201015105YesYesYesYesYesOct 2019
Environmental influences on Child Health Outcomes (ECHO) CohortMatt GillmanUSA1980ongoing100000YesYesYesYesYesOct 2019
EPIC (European Prospective Investigation into Cancer, Chronic Diseases, Nutrition and Lifestyle)Elio Riboli, Paul Brennan, Marc GunterUK, Italy, France, Germany, Norway, Netherlands, Denmark, Spain, Greece, Sweden19922023521000YesYesYesYesYesOct 2019
EpiHealthLars Lind, Sölve ElmstålhSweden201120182500025000YesNoYesYesYesOct 2019
EpiHealthLars Lind, Sölve ElmstålhSweden201120182500025000YesNoYesYesYesOct 2019
Estonian Genome ProjectAndres MetspaluEstonia20022018200000200000YesYesYesYesYesOct 2019
Finnish Maternity Cohort Serum BankHeljä-Marja SurcelFinland19832016950000YesNoYesNoYesOct 2019
Geisinger Cohort – MyCode Community Health InitiativeNatasha StrandeUSA2007ongoing252160250000YesYesYesYesYesOct 2019
Generations Study (GS)Anthony SwerdlowUK, England, Scotland, Wales, Northern Ireland, Isle of Man, Channel Islands20032015113000100000YesNoYesYesYesOct 2019
Genomics England / 100,000 Genomes ProjectMark CaulfieldEngland20132018100000500000YesNoYesYesYesOct 2019
German National Cohort (NAKO)Annette PetersGermany20142019205217NoYesYesYesOct 2019
Golestan Cohort StudyReza Malekzadeh, Christian Abnet, Paolo Boffetta, Paul Brennan, Farin Kamangar, Arash EtemadiIran2004200850000NoYesYesYesYesOct 2019
Healthy NevadaJoe GrzymskiUSA2016ongoing35000250000YesYesYesYesOct 2019
Israel Genome ProjectGad RennertIsraelongoing140000YesNoYesYesOct 2019
Japan Public Health Center-based Prospective Study (JPHC)Shoichiro TsuganeJapan19901994130000YesYesYesYesYesOct 2019
Japan Public Health Center-based Prospective Study for the Next Generation (JPHC-NEXT)Shoichiro TsuganeJapan20112016115000NoYesYesYesOct 2019
Kaiser Permanente Research Bank (KPRB)Sarah RowellUSA, California2008ongoing380000400000YesYesYesYesYesOct 2019
Korea Biobank ProjectJae-Pil Jeon,Changhoon KimRepublic of Koreaongoing830000YesNoYesYesYesOct 2019
Korean Cancer Prevention Study (KCPS-II Biobank)Sun Ha JeeKorea20042013156701YesYesYesYesYesOct 2019
Korean Genome and Epidemiologyl Study (KoGES)Sung Soo KimSouth Korea, Vietnam, Cambodia, Japan, China20012013235000YesYesYesYesYesOct 2019
LifeGene (and sister cohort, EpiHealth)Nancy PedersenSweden2009201651300300000YesYesYesYesYesOct 2019
LIFEPATH (Lifecourse biological pathways underlying social differences in healthy aging)Terrence SimmonsEurope, Australian, USA235000YesYesYesYesYesOct 2019
Malaysian CohortRahman JamalMalaysia20072013106527YesYesYesYesYesOct 2019
Maule Cohort (MAUCO Study)Catterina FerreccioChile20152018920010000YesYesYesYesYesOct 2019
Mexico City Prospective StudyJesus Alegre, Jonathan Emberson, Pablo Kuri-Morales, Roberto Tapia-ConyerMexico29982004159755NoNoYesYesYesOct 2019
Million Veteran ProgramMike GazianoUSA2011ongoing7850001000000YesYesYesYesOct 2019
Million Women StudyValerie BeralEngland, Scotland199620011320000NoYesYesYesOct 2019
Multiethnic Cohort Study (MEC, NCI)Loic Le MarchandUSA, Hawaii, California19931997215251YesYesYesYesYesOct 2019
Netherlands Twin RegistryDorret BoomsmaNetherlands1987ongoing275000YesYesYesYesYesOct 2019
Newfoundland 100K Genome Project / Sequence BioMichael PhillipsCanada, Province of Newfoundland and Labrador2018ongoing520000YesNoYesYesYesOct 2019
NHS (Nurses’ Health Study, NCI)Meir Stampfer, Rulla TamimiUSA19761976121700YesYesYesYesYesOct 2019
NHSII (Nurses’ Health Study II, NCI)Walter Willett, Heather EliassenUSA19891989116430YesYesYesYesYesOct 2019
NICCCRennert GadIsraelongoing40000YesYesYesYesYesOct 2019
Northern Sweden Health and Disease StudyBeatrice MelinSweden1985ongoing135000YesNoYesYesOct 2019
Norwegian Family Based Life Course StudyØyvind NæssNorway196020115266270YesYesYesYesYesOct 2019
Norwegian Mother and Child Cohort Study (MoBa)Per MagnusNorway19992008284000YesYesYesYesYesOct 2019
Pakistan Genomic Resource (PGR)Danish SalaheenPakistan1500001000000YesOct 2019
PERSIAN Cohort StudyReza Malekzadeh, Hossein Poustchi, Farin Kamangar, Arash EtemadiIran2014ongoing180000NoYesYesYesYesOct 2019
PLCO (Prostate, Lung, Colorectal and Ovarian Cancer Screening Trial, NCI)Paul Pinsky, Neal FreedmanUSA19932001154907YesYesYesYesYesOct 2019
Qatar BiobankNahla AfifiQatar2013ongoing2600060000YesYesYesYesYesApril 2021
Qatar Genome ProjectHamdi MbarekQatar2015ongoing15000300000YesYesOct 2019
SAPRIN (South African Population Research Infrastructure Network)Kobus HerbstSouth Africa1993ongoing350000700000NoNoYesYesYesOct 2019
Saudi Human Genome ProgramSultan AlSudiri, Malak AbedalthagafiSaudi Arabia100000NoNoYesYesOct 2019
Saudi National BiobankJahad AlghamdiSaudi Arabiaongoing2000NoNoYesYesYesOct 2019
Shanghai Men and Women’s Health Study (2 cohorts)Wei ZhengShanghai, China19962000136000NoYesYesOct 2019
Singapore National Precision Medicine ProgramJohn ChambersSingapore2019ongoing100001000000YesNoYesYesYesOct 2019
South(east) Asian Cohorts – NETWORKRajiv ChowdhuryBangladesh, Malaysia, Sri Lanka2010ongoing75000150000YesYesYesYesYesOct 2019
Taiwan BiobankTe-Chang Lee, Chung-ke ChangTaiwan2012ongoing118548200000YesNoYesYesYesOct 2019
Trøndelag Health Study (HUNT)Steinar KrokstadNorway19842019248000YesYesYesYesYesMay 2019
U.S. Precision Medicine Initiative / All of UsStephanie DevaneyUSA2018ongoing1911051000000YesYesYesYesYesOct 2019
UK BiobankRory CollinsEngland, Scotland, Wales20062010502713500000YesYesYesYesYesOct 2019
UK Blood Donor CohortsEmanuele Di Angelantonio, John DaneshUK2012ongoing100000350000YesYesYesYesyesOct 2019
UKLWC (UK Collaborative Trial of Ovarian Cancer Screening) Longitudinal Women’s Cohort UKLWCUsha MenonEngland, Wales, Northern Ireland20012005202638NoNoYesYesYesOct 2019
Vorarlberg Health Monitoring and Promotion Programme (VHM&PP)Hans Concin, Gabriele Nagel, Hanno UlmerAustria19852014180000NoYesYesYesYesOct 2019
WHI (Women’s Health Initiative)Garnet AndersonUSA19931998161808YesYesYesYesYesOct 2019

Note: This is a high level indication of the availability of subsets of data and/or specimens in the categories listed. Please visit the Cohort website for specific information.