Member Cohorts
| Cohort Name | PI/Lead | Regions | Enroll Start | Enroll End | Enrolled | Target Enrollment | Genomic Data | Env. Data | Bio specimens | Phenotypic Data | Data Sharing | Date Verified |
|---|---|---|---|---|---|---|---|---|---|---|---|---|
| 23andMe | Joyce Tung | USA | 2007 | Ongoing | 6,800,000.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 | |
| 45 and Up Study | Martin McNamara | Australia | 2006 | 2009 | 267,153.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 | |
| Africa Health Research Institute (AHRI) Population Cohort | Willem Hankom | South Africa | 2000 | Ongoing | 130,000.00 | 130,000.00 | Yes | Yes | Yes | Yes | Oct 2019 | |
| Apolipoprotein MORtality RISk study (AMORIS) | Goran Walldius | Sweden | 1985 | 1996 | 812,073.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 | |
| Biobank Japan | Yoshinori Murakami | Japan | 2003 | 2018 | 270,000.00 | 270,000.00 | Yes | Yes | Yes | Yes | Oct 2019 | |
| BioVU Vanderbilt | Dan Roden | USA | 2007 | Ongoing | 244,000.00 | Yes | No | Yes | Yes | Yes | Oct 2019 | |
| California Teachers Study (CTS) | Jim Lacey, Elena Martinez | USA | 1995 | 1996 | 133,477.00 | Yes | Yes | Yes | Yes | Yes | ||
| Canadian Partnership for Tomorrow’s Health (CanPath) | Philip Awadalla | Canada | 2008 | ongoing | 330000 | Yes | Yes | Yes | Yes | Yes | Oct 2019 | |
| Cancer Prevention Study II (CPS-II) | Eric Jacobs | USA | 1982 | 1983 | Yes | Yes | Yes | Yes | Oct 2019 | |||
| Cancer Prevention Study II Nutrition Cohort | Alpa Patel | USA | 1992 | 1993 | Yes | Yes | Yes | Yes | Oct 2019 | |||
| Children’s Hospital of Philadelphia (CHOP) Biorepository | Hakon Hakonarson | USA, Europe, South America, Canada, Saudi Arabia, Australia | 2006 | ongoing | 500,000.00 | 1,000,000.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 |
| China Kadoorie Biobank | Zhengming Chen,Liming Li | China | 2004 | 2008 | 512,891.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 | |
| China PEACE (Patient-centered Evaluative Assessment of Cardiac Events) Million Persons Project | Linxin Jiang | China | 2014 | ongoing | 2,000,000.00 | 4,000,000.00 | No | Yes | Yes | Yes | Yes | Oct 2019 |
| Constances Project | Marie Zins | France | 2012 | 2019 | 210,000.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 | |
| Danish National Birth Cohort | Mads Melbye | Denmark | 1998 | 2002 | 198,028.00 | Yes | Yes | Yes | Yes | Oct 2019 | ||
| East London Genes and Health | David van Heel | UK | 2015 | ongoing | 41,500.00 | 100,000.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 |
| ELSA-Brasil | Paulo A. Lotufo | Brazil | 2008 | 2010 | 15,105.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 | |
| Environmental influences on Child Health Outcomes (ECHO) Cohort | Matt Gillman | USA | 1980 | ongoing | 100,000.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 | |
| EPIC (European Prospective Investigation into Cancer, Chronic Diseases, Nutrition and Lifestyle) | Elio Riboli, Paul Brennan, Marc Gunter | UK, Italy, France, Germany, Norway, Netherlands, Denmark, Spain, Greece, Sweden | 1992 | 2023 | 521,000.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 | |
| EpiHealth | Lars Lind, Sölve Elmstålh | Sweden | 2011 | 2018 | 25,000.00 | 25,000.00 | Yes | No | Yes | Yes | Yes | Oct 2019 |
| Estonian Genome Project | Andres Metspalu | Estonia | 2002 | 2018 | 200,000.00 | 200,000.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 |
| Finnish Maternity Cohort Serum Bank | Heljä-Marja Surcel | Finland | 1983 | 2016 | 950,000.00 | Yes | No | Yes | No | Yes | Oct 2019 | |
| Geisinger Cohort – MyCode Community Health Initiative | Natasha Strande, David H Ledbetter | USA | 2007 | ongoing | 252,160.00 | 250,000.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 |
| Generations Study (GS) | Anthony Swerdlow | UK, England, Scotland, Wales, Northern Ireland, Isle of Man, Channel Islands | 2003 | 2015 | 113,000.00 | 100,000.00 | Yes | No | Yes | Yes | Yes | Oct 2019 |
| Genomics England / 100,000 Genomes Project | Mark Caulfield | England | 2013 | 2018 | 100,000.00 | 500,000.00 | Yes | No | Yes | Yes | Yes | Oct 2019 |
| German National Cohort (NAKO) | Annette Peters | Germany | 2014 | 2019 | 205,217.00 | No | Yes | Yes | Yes | Oct 2019 | ||
| Golestan Cohort Study | Reza Malekzadeh, Christian Abnet, Paolo Boffetta, Paul Brennan, Farin Kamangar, Arash Etemadi | Iran | 2004 | 2008 | 50,000.00 | No | Yes | Yes | Yes | Yes | Oct 2019 | |
| Healthy Nevada | Joe Grzymski | USA | 2016 | ongoing | 35,000.00 | 250,000.00 | Yes | Yes | Yes | Yes | Oct 2019 | |
| Israel Genome Project | Gad Rennert | Israel | ongoing | 140,000.00 | Yes | No | Yes | Yes | Oct 2019 | |||
| Japan Public Health Center-based Prospective Study (JPHC) | Shoichiro Tsugane | Japan | 1990 | 1994 | 130,000.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 | |
| Japan Public Health Center-based Prospective Study for the Next Generation (JPHC-NEXT) | Shoichiro Tsugane | Japan | 2011 | 2016 | 115,000.00 | No | Yes | Yes | Yes | Oct 2019 | ||
| Kaiser Permanente Research Program on Genes, Environment, and Health | Catherine Schaefer | USA, California | 2008 | ongoing | 210,000.00 | 500,000.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 |
| Korea Biobank Project | Jae-Pil Jeon,Changhoon Kim | Republic of Korea | ongoing | 830,000.00 | Yes | No | Yes | Yes | Yes | Oct 2019 | ||
| Korean Cancer Prevention Study (KCPS-II Biobank) | Sun Ha Jee | Korea | 2004 | 2013 | 156,701.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 | |
| Korean Genome and Epidemiologyl Study (KoGES) | Sung Soo Kim | South Korea, Vietnam, Cambodia, Japan, China | 2001 | 2013 | 235,000.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 | |
| LifeGene (and sister cohort, EpiHealth) | Nancy Pedersen | Sweden | 2009 | 2016 | 51,300.00 | 300,000.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 |
| LIFEPATH (Lifecourse biological pathways underlying social differences in healthy aging) | Terrence Simmons | Europe, Australian, USA | 235,000.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 | |||
| Malaysian Cohort | Rahman Jamal | Malaysia | 2007 | 2013 | 106,527.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 | |
| Maule Cohort (MAUCO Study) | Catterina Ferreccio | Chile | 2015 | 2018 | 9,200.00 | 10,000.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 |
| Mexico City Prospective Study | Jesus Alegre, Jonathan Emberson, Pablo Kuri-Morales, Roberto Tapia-Conyer | Mexico | 2998 | 2004 | 159,755.00 | No | No | Yes | Yes | Yes | Oct 2019 | |
| Million Veteran Program | Mike Gaziano | USA | 2011 | ongoing | 785,000.00 | 1,000,000.00 | Yes | Yes | Yes | Yes | Oct 2019 | |
| Million Women Study | Valerie Beral | England, Scotland | 1996 | 2001 | 1,320,000.00 | No | Yes | Yes | Yes | Oct 2019 | ||
| Multiethnic Cohort Study (MEC, NCI) | Loic Le Marchand | USA, Hawaii, California | 1993 | 1997 | 215,251.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 | |
| Netherlands Twin Registry | Dorret Boomsma | Netherlands | 1987 | ongoing | 275,000.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 | |
| Newfoundland 100K Genome Project / Sequence Bio | Michael Phillips | Canada, Province of Newfoundland and Labrador | 2018 | ongoing | 520,000.00 | Yes | No | Yes | Yes | Yes | Oct 2019 | |
| NHS (Nurses’ Health Study, NCI) | Meir Stampfer, Rulla Tamimi | USA | 1976 | 1976 | 121,700.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 | |
| NHSII (Nurses’ Health Study II, NCI) | Walter Willett, Heather Eliassen | USA | 1989 | 1989 | 116,430.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 | |
| NICCC | Rennert Gad | ongoing | 40,000.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 | |||
| Nord-Trøndelag Health Study (HUNT) | Steinar Krokstad | Norway | 1984 | 2019 | 106,446.00 | 140,000.00 | Yes | No | Yes | No | Yes | May 2019 |
| Northern Sweden Health and Disease Study | Beatrice Melin | Sweden | 1985 | ongoing | 135,000.00 | Yes | No | Yes | Yes | Oct 2019 | ||
| Norwegian Family Based Life Course Study | Øyvind Næss | Norway | 1960 | 2011 | 5,266,270.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 | |
| Norwegian Mother and Child Cohort Study (MoBa) | Per Magnus | Norway | 1999 | 2008 | 284,000.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 | |
| Pakistan Genomic Resource (PGR) | Danish Salaheen | Pakistan | 150,000.00 | 1,000,000.00 | Yes | Oct 2019 | ||||||
| PERSIAN Cohort Study | Reza Malekzadeh, Hossein Poustchi, Farin Kamangar, Arash Etemadi | Iran | 2014 | ongoing | 180,000.00 | No | Yes | Yes | Yes | Yes | Oct 2019 | |
| PLCO (Prostate, Lung, Colorectal and Ovarian Cancer Screening Trial, NCI) | Paul Pinsky, Neal Freedman | USA | 1993 | 2001 | 154,907.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 | |
| Qatar Genome Project | Hamdi Mbarek | Qatar | 2015 | ongoing | 15,000.00 | 300,000.00 | Yes | Yes | Oct 2019 | |||
| SAPRIN (South African Population Research Infrastructure Network) | Kobus Herbst | South Africa | 1993 | ongoing | 350,000.00 | 700,000.00 | No | No | Yes | Yes | Yes | Oct 2019 |
| Saudi Human Genome Program | Sultan AlSudiri, Malak Abedalthagafi | Saudi Arabia | 100,000.00 | No | No | Yes | Yes | Oct 2019 | ||||
| Saudi National Biobank | Jahad Alghamdi | Saudi Arabia | ongoing | 2,000.00 | No | No | Yes | Yes | Yes | Oct 2019 | ||
| Shanghai Men and Women’s Health Study (2 cohorts) | Wei Zheng | Shanghai, China | 1996 | 2000 | 136,000.00 | No | Yes | Yes | Oct 2019 | |||
| Singapore National Precision Medicine Program | Patrick Tan, E Shyong Tai | Singapore | 10,000.00 | 1,000,000.00 | Yes | No | Yes | Yes | Yes | Oct 2019 | ||
| South(east) Asian Cohorts – NETWORK | Rajiv Chowdhury | Bangladesh, Malaysia, Sri Lanka | 2010 | ongoing | 75,000.00 | 150,000.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 |
| Taiwan Biobank | Te-Chang Lee, Chung-ke Chang | Taiwan | 2012 | ongoing | 118,548.00 | 200,000.00 | Yes | No | Yes | Yes | Yes | Oct 2019 |
| U.S. Precision Medicine Initiative / All of Us | Stephanie Devaney | USA | 2018 | ongoing | 191,105.00 | 1,000,000.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 |
| UK Biobank | Rory Collins | England, Scotland, Wales | 2006 | 2010 | 502,713.00 | 500,000.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 |
| UK Blood Donor Cohorts | Emanuele Di Angelantonio, John Danesh | UK | 2012 | ongoing | Yes | Yes | Yes | Yes | Yes | Oct 2019 | ||
| UKLWC (UK Collaborative Trial of Ovarian Cancer Screening) Longitudinal Women’s Cohort UKLWC | Usha Menon | England, Wales, Northern Ireland | 2001 | 2005 | 202,638.00 | No | No | Yes | Yes | Yes | Oct 2019 | |
| Vorarlberg Health Monitoring and Promotion Programme (VHM&PP) | Hans Concin, Gabriele Nagel, Hanno Ulmer | Austria | 1985 | 2014 | 180,000.00 | No | Yes | Yes | Yes | Yes | Oct 2019 | |
| WHI (Women’s Health Initiative) | Garnet Anderson | USA | 1993 | 1998 | 161,808.00 | Yes | Yes | Yes | Yes | Yes | Oct 2019 |
Note: This is a high level indication of the availability of subsets of data and/or specimens in the categories listed. Please visit the Cohort website for specific information.
