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International HundredK+ Cohorts Consortium (IHCC)

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Member Cohorts

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Cohort NamePI/LeadRegionsEnroll StartEnroll EndEnrolledTarget EnrollmentGenomic DataEnv. DataBio specimensPhenotypic DataData SharingDate Verified
23andMeJoyce TungUSA2007Ongoing6,800,000.00YesYesYesYesYesOct 2019
45 and Up StudyMartin McNamaraAustralia20062009267,153.00YesYesYesYesYesOct 2019
Africa Health Research Institute (AHRI) Population CohortWillem HankomSouth Africa2000Ongoing130,000.00130,000.00YesYesYesYesOct 2019
Apolipoprotein MORtality RISk study (AMORIS)Goran WalldiusSweden19851996812,073.00YesYesYesYesYesOct 2019
Biobank JapanYoshinori MurakamiJapan20032018270,000.00270,000.00YesYesYesYesOct 2019
BioVU VanderbiltDan RodenUSA2007Ongoing244,000.00YesNoYesYesYesOct 2019
California Teachers Study (CTS)Jim Lacey, Elena MartinezUSA19951996133,477.00YesYesYesYesYes
Cancer Prevention Study II (CPS-II)Susan GapsturUSA198219831,185,106.00YesYesYesYesOct 2019
Cancer Prevention Study II Nutrition CohortSusan GapsturUSA19921993184,194.00YesYesYesYesOct 2019
Children’s Hospital of Philadelphia (CHOP) BiorepositoryHakon HakonarsonUSA, Europe, South America, Canada, Saudi Arabia, Australia2006ongoing500,000.001,000,000.00YesYesYesYesYesOct 2019
China Kadoorie BiobankZhengming Chen,Liming LiChina20042008512,891.00YesYesYesYesYesOct 2019
China PEACE (Patient-centered Evaluative Assessment of Cardiac Events) Million Persons ProjectLinxin JiangChina2014ongoing2,000,000.004,000,000.00NoYesYesYesYesOct 2019
Constances ProjectMarie ZinsFrance20122019210,000.00YesYesYesYesYesOct 2019
Danish National Birth CohortMads MelbyeDenmark19982002198,028.00YesYesYesYesOct 2019
East London Genes and HealthDavid van HeelUK2015ongoing41,500.00100,000.00YesYesYesYesYesOct 2019
ELSA-BrasilPaulo A. LotufoBrazil2008201015,105.00YesYesYesYesYesOct 2019
Environmental influences on Child Health Outcomes (ECHO) CohortMatt GillmanUSA1980ongoing100,000.00YesYesYesYesYesOct 2019
EPIC (European Prospective Investigation into Cancer, Chronic Diseases, Nutrition and Lifestyle)Elio Riboli, Paul Brennan, Marc GunterUK, Italy, France, Germany, Norway, Netherlands, Denmark, Spain, Greece, Sweden19922023521,000.00YesYesYesYesYesOct 2019
EpiHealthLars Lind, Sölve ElmstålhSweden2011201825,000.0025,000.00YesNoYesYesYesOct 2019
Estonian Genome ProjectAndres MetspaluEstonia20022018200,000.00200,000.00YesYesYesYesYesOct 2019
Finnish Maternity Cohort Serum BankHeljä-Marja SurcelFinland19832016950,000.00YesNoYesNoYesOct 2019
Geisinger Cohort – MyCode Community Health InitiativeNatasha Strande, David H LedbetterUSA2007ongoing252,160.00250,000.00YesYesYesYesYesOct 2019
Generations Study (GS)Anthony SwerdlowUK, England, Scotland, Wales, Northern Ireland, Isle of Man, Channel Islands20032015113,000.00100,000.00YesNoYesYesYesOct 2019
Genomics England / 100,000 Genomes ProjectMark CaulfieldEngland20132018100,000.00500,000.00YesNoYesYesYesOct 2019
German National Cohort (NAKO)Annette PetersGermany20142019205,217.00NoYesYesYesOct 2019
Golestan Cohort StudyReza Malekzadeh, Christian Abnet, Paolo Boffetta, Paul Brennan, Farin Kamangar, Arash EtemadiIran2004200850,000.00NoYesYesYesYesOct 2019
Healthy NevadaJoe GrzymskiUSA2016ongoing35,000.00250,000.00YesYesYesYesOct 2019
Israel Genome ProjectGad RennertIsraelongoing140,000.00YesNoYesYesOct 2019
Japan Public Health Center-based Prospective Study (JPHC)Shoichiro TsuganeJapan19901994130,000.00YesYesYesYesYesOct 2019
Japan Public Health Center-based Prospective Study for the Next Generation (JPHC-NEXT)Shoichiro TsuganeJapan20112016115,000.00NoYesYesYesOct 2019
Kaiser Permanente Research Program on Genes, Environment, and HealthCatherine SchaeferUSA, California2008ongoing210,000.00500,000.00YesYesYesYesYesOct 2019
Korea Biobank ProjectJae-Pil Jeon,Changhoon KimRepublic of Koreaongoing830,000.00YesNoYesYesYesOct 2019
Korean Cancer Prevention Study (KCPS-II Biobank)Sun Ha JeeKorea20042013156,701.00YesYesYesYesYesOct 2019
Korean Genome and Epidemiologyl Study (KoGES)Sung Soo KimSouth Korea, Vietnam, Cambodia, Japan, China20012013235,000.00YesYesYesYesYesOct 2019
LifeGene (and sister cohort, EpiHealth)Nancy PedersenSweden2009201651,300.00300,000.00YesYesYesYesYesOct 2019
LIFEPATH (Lifecourse biological pathways underlying social differences in healthy aging)Terrence SimmonsEurope, Australian, USA235,000.00YesYesYesYesYesOct 2019
Malaysian CohortRahman JamalMalaysia20072013106,527.00YesYesYesYesYesOct 2019
Maule Cohort (MAUCO Study)Catterina FerreccioChile201520189,200.0010,000.00YesYesYesYesYesOct 2019
Mexico City Prospective StudyJesus Alegre, Jonathan Emberson, Pablo Kuri-Morales, Roberto Tapia-ConyerMexico29982004159,755.00NoNoYesYesYesOct 2019
Million Veteran ProgramMike GazianoUSA2011ongoing785,000.001,000,000.00YesYesYesYesOct 2019
Million Women StudyValerie BeralEngland, Scotland199620011,320,000.00NoYesYesYesOct 2019
Multiethnic Cohort Study (MEC, NCI)Loic Le MarchandUSA, Hawaii, California19931997215,251.00YesYesYesYesYesOct 2019
Netherlands Twin RegistryDorret BoomsmaNetherlands1987ongoing275,000.00YesYesYesYesYesOct 2019
Newfoundland 100K Genome Project / Sequence BioMichael PhillipsCanada, Province of Newfoundland and Labrador2018ongoing520,000.00YesNoYesYesYesOct 2019
NHS (Nurses’ Health Study, NCI)Meir Stampfer, Rulla TamimiUSA19761976121,700.00YesYesYesYesYesOct 2019
NHSII (Nurses’ Health Study II, NCI)Walter Willett, Heather EliassenUSA19891989116,430.00YesYesYesYesYesOct 2019
NICCCRennert Gadongoing40,000.00YesYesYesYesYesOct 2019
Nord-Trøndelag Health Study (HUNT)Steinar KrokstadNorway19842019106,446.00140,000.00YesNoYesNoYesMay 2019
Northern Sweden Health and Disease StudyBeatrice MelinSweden1985ongoing135,000.00YesNoYesYesOct 2019
Norwegian Family Based Life Course StudyØyvind NæssNorway196020115,266,270.00YesYesYesYesYesOct 2019
Norwegian Mother and Child Cohort Study (MoBa)Per MagnusNorway19992008284,000.00YesYesYesYesYesOct 2019
OHS (Ontario Health Study)Philip AwadallaCanada2008ongoing315,000.00YesYesYesYesYesOct 2019
Pakistan Genomic Resource (PGR)Danish SalaheenPakistan150,000.001,000,000.00YesOct 2019
PERSIAN Cohort StudyReza Malekzadeh, Hossein Poustchi, Farin Kamangar, Arash EtemadiIran2014ongoing180,000.00NoYesYesYesYesOct 2019
PLCO (Prostate, Lung, Colorectal and Ovarian Cancer Screening Trial, NCI)Paul Pinsky, Neal FreedmanUSA19932001154,907.00YesYesYesYesYesOct 2019
Qatar Genome ProjectHamdi MbarekQatar2015ongoing15,000.00300,000.00YesYesOct 2019
SAPRIN (South African Population Research Infrastructure Network)Kobus HerbstSouth Africa1993ongoing350,000.00700,000.00NoNoYesYesYesOct 2019
Saudi Human Genome ProgramSultan AlSudiri, Malak AbedalthagafiSaudi Arabia100,000.00NoNoYesYesOct 2019
Saudi National BiobankJahad AlghamdiSaudi Arabiaongoing2,000.00NoNoYesYesYesOct 2019
Shanghai Men and Women’s Health Study (2 cohorts)Wei ZhengShanghai, China19962000136,000.00NoYesYesOct 2019
Singapore National Precision Medicine ProgramPatrick Tan, E Shyong TaiSingapore10,000.001,000,000.00YesNoYesYesYesOct 2019
South(east) Asian Cohorts – NETWORKRajiv ChowdhuryBangladesh, Malaysia, Sri Lanka2010ongoing75,000.00150,000.00YesYesYesYesYesOct 2019
Taiwan BiobankTe-Chang Lee, Chung-ke ChangTaiwan2012ongoing118,548.00200,000.00YesNoYesYesYesOct 2019
U.S. Precision Medicine Initiative / All of UsStephanie DevaneyUSA2018ongoing191,105.001,000,000.00YesYesYesYesYesOct 2019
UK BiobankRory CollinsEngland, Scotland, Wales20062010502,713.00500,000.00YesYesYesYesYesOct 2019
UK Blood Donor CohortsEmanuele Di Angelantonio, John DaneshUK2012ongoing100,000.00350,000.00YesYesYesYesyesOct 2019
UKLWC (UK Collaborative Trial of Ovarian Cancer Screening) Longitudinal Women’s Cohort UKLWCUsha MenonEngland, Wales, Northern Ireland20012005202,638.00NoNoYesYesYesOct 2019
Vorarlberg Health Monitoring and Promotion Programme (VHM&PP)Hans Concin, Gabriele Nagel, Hanno UlmerAustria19852014180,000.00NoYesYesYesYesOct 2019
WHI (Women’s Health Initiative)Garnet AndersonUSA19931998161,808.00YesYesYesYesYesOct 2019

Note: This is a high level indication of the availability of subsets of data and/or specimens in the categories listed. Please visit the Cohort website for specific information.

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