Linking cohorts, understanding biology, improving health

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WORKING GROUP

Data Standards and Infrastructure

Delivering IT standards and infrastructure for IHCC to enable population-scale genomic and biomolecular data accessible across international borders.

WHAT WE DO

Core Initiatives

  • Federated data discovery/authentication alignment
  • Interoperability/harmonization of data
  • Cohort level metadata representation
  • Federated research analyses
  • Clinical applications
  • Findable, Accessible, Interoperable, Reusable (FAIR) data analyses
  • Ethical, Legal, and Social Implications (ELSI) of data sharing
  • International Statistical Classification of Diseases and Related Problems (ICD10)
  • SNOMED
  • BiobankConnect

Leadership

Carles Garcia, Ph.D.

Working Group Project Manager

Philip Awadalla, Ph.D.

Working Group Lead

Thomas Keane, Ph.D.

Working Group Lead

Join Us!

The Data Standards and Infrastructure Working Group members meet twice a month. 

Interested in Joining the Scientific Strategies Working Group?

Email us at ihccinfo@ihccglobal.org and we will connect you to the team.